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Newborn Blood-Storage Law Stirs Fears of DNA Warehouse

 
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Newborn Blood-Storage Law Stirs Fears of DNA Warehouse - 5/21/2008 12:59:22 PM   
Bettawrekonize

 

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Joined: 4/17/2005
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quote:


An obscure bill that sailed through Congress and was signed into law last month is stoking fears of a nationwide DNA warehouse potentially open to abuse by law enforcement agencies or health insurance companies.
...
The Newborn Screening Saves Lives Act of 2007 (S.1858/H.R. 3825), signed into law on April 24, empowers a committee to provide guidelines to all states on how -- and for how long -- they should store blood. At present, all states store blood from all newborns, and some, like California, store it indefinitely. Eight of the committee's nine members are medical researchers, who almost universally favor longer storage times, so critics fear that the national guidelines will lead to more storage of samples, which contain recoverable DNA.

"What we are doing is taking an individual genetic code and saying it's the government's," said Twila Brase, of the Minnesota activist group Citizens' Council on Health Care. "And once we do that, it's available for whatever a legislature wants to do in 20 years. The fact of the matter is that we don't know what they could or would do."


LINK

I don't like the idea of the government having my DNA on file without my permission (of course a newborn is too young to contest this, but permission should be required by parents).

< Message edited by Bettawrekonize -- 5/21/2008 1:06:08 PM >
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RE: Newborn Blood-Storage Law Stirs Fears of DNA Warehouse - 5/21/2008 2:56:55 PM   
cow451


Posts: 3749
Joined: 5/6/2005
Status: offline
quote:

ORIGINAL: Bettawrekonize

quote:


An obscure bill that sailed through Congress and was signed into law last month is stoking fears of a nationwide DNA warehouse potentially open to abuse by law enforcement agencies or health insurance companies.
...
The Newborn Screening Saves Lives Act of 2007 (S.1858/H.R. 3825), signed into law on April 24, empowers a committee to provide guidelines to all states on how -- and for how long -- they should store blood. At present, all states store blood from all newborns, and some, like California, store it indefinitely. Eight of the committee's nine members are medical researchers, who almost universally favor longer storage times, so critics fear that the national guidelines will lead to more storage of samples, which contain recoverable DNA.

"What we are doing is taking an individual genetic code and saying it's the government's," said Twila Brase, of the Minnesota activist group Citizens' Council on Health Care. "And once we do that, it's available for whatever a legislature wants to do in 20 years. The fact of the matter is that we don't know what they could or would do."


LINK

I don't like the idea of the government having my DNA on file without my permission (of course a newborn is too young to contest this, but permission should be required by parents).

The technology to store cord blood for later potential use in battling autoimmune disorders like leukemia is positive. It's not going to stop because of our paranoia about potential abuses. Technology never stops (except that which Big Oil opposes, but that's off topic). Therefore we have to constantly work on privacy, ethical and legal protections to minimize violation of civil liberties.

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